Cystic Fibrosis Prognosis
Cystic fibrosis (CF) is now as much a disease of adults as of children
and adolescents. An important focus of recent research
has been the impact of the complex,
expensive, and time consuming routine of self-care and medical treatment
that is required
by adults with CF to maintain health. A
growing concern for medical and allied health teams is the issue of
patient adherence
to prescribed health management plans. A
summary of the particular medical and treatment context of CF is
followed by a review
of adherence measurement issues and the
determinants of adherence to treatment regimens in people with CF,
primarily adults.
Evidence for factors which influence
adherence decisions of people with CF is examined. The medical and
psychological aspects
of this complex problem have not been
adequately addressed because of difficulties with definition and
measurement. Only a
small proportion of the variance in
adherence has been accounted for in the literature. New measurement
technologies and new
theoretical directions offer promise
for a better understanding of this complex and important issue and may
result in more
effective intervention strategies to
improve adherence.
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