Living With Cystic Fibrosis
The purpose of this qualitative study was to illuminate experiences of
growing up and living with cystic fibrosis (CF). The patients' and their
families' encounters with health care and social services were of
particular interest. Four focus groups (adults with CF and parents of
children with CF) were conducted. Three main themes emerged from the
analysis: "From uncertainty to certainty," "A demanding but normal
life," and "A wish for continuity, stability, and respect." As also
documented by other studies on the chronically ill, normalization seems
to be an important strategy, a strategy that seems not to be fully
understood by the helpers.
Living With Cystic Fibrosis
Living With Cystic Fibrosis
Living With Cystic Fibrosis
Living With Cystic Fibrosis
Living With Cystic Fibrosis
Living With Cystic Fibrosis
Living With Cystic Fibrosis
Living With Cystic Fibrosis
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