Sweat Test For Cf
Newborn screening (NBS) protocols for cystic fibrosis (CF) are the first
regional population-based programs to incorporate DNA analysis into
their procedures. Research about these programs can inform policy and
practice regarding how best to counsel families with abnormal NBS
results. The grounded theory method guided interviews with 33 families
whose infants had abnormal CF NBS results. A dimensional analysis of
these interviews provided a theoretical framework describing parents'
preferences regarding counseling during their infant's sweat test
appointment. This framework describes the contexts and characteristics
of the two main dimensions of parents' preferences: factual information
and emotional support. Factual information included learning about the
probability of a CF diagnosis, CF disease facts, sweat test procedure,
and CF genetics. Social support consisted of offering parents a choice
about the timing and amount of CF information, showing empathy for their
distress, instilling hope, personalizing counseling, and providing
hospitality. This framework also explains the consequences of counseling
that matched versus mismatched parental preferences in these domains.
Counseling that matched parents preferences reduced parents' distress
while mismatched counseling tended to increase parents' worry about
their infant.
Sweat Test For Cf
Sweat Test For Cf
Sweat Test For Cf
Sweat Test For Cf
Sweat Test For Cf
Sweat Test For Cf
Sweat Test For Cf
Sweat Test For Cf
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