Systic Fibrosis
The review includes 13 studies (five new at this update) representing
data from 529 participants. Studies mainly assessed behavioural and
educational interventions:1. gene pre-test education counselling for
relatives of those with CF;2. biofeedback, massage and music therapy to
assist physiotherapy;3. behavioural and educational interventions to
improve dietary intake and airway clearance;4. self-administration of
medication and education to promote independence, knowledge and quality
of life; and5. systemic interventions promoting psychosocial
functioning.A substantial proportion of outcomes were educational or
behavioural relating to issues of adherence, change in physical status
or other specific treatment concerns during the chronic phase of the
disease. Some evidence was found for relative's acceptance of a genetic
test for carrier status when using home-based rather than clinic-based
information leaflets and testing. There is some evidence that
behavioural interventions improve emotional outcomes in people with CF
and their carers, and that psychoeducational interventions improve
knowledge in the short term. There was no consistent effect on lung
function, although one small study showed that biofeedback-assisted
breathing re-training helped improve some lung function measurements.
Some studies point to educational and behavioural interventions aiding
nutrition and growth in people with CF. Currently there is insufficient
evidence for interventions aimed at other aspects of the disease
process.
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