Cystic Fibrosis Screening
Methods The sample comprised all
carriers (n=435) and, for each carrier, two matched screen-negative
individuals (n=870) detected during screening programmes for cystic
fibrosis in the general population and in antenatal populations carried
out a median of 3 years earlier in six UK centres. Questionnaires were
sent to all eligible participants, with reminders sent to
non-responders. The main endpoints were understanding of test results,
degree of anxiety, perceptions of health, and reproductive intentions,
and behaviour.
Findings 746 (62%)
of 1201 questionnaires were returned. Recall of the meaning of test
results was accurate in 225 (80%) of 280 carriers but only 200 (43%) of
466 screen-negative individuals. 46 (16%) of 280 proven carriers
believed that their result meant that they were only likely, rather than
definitely, to be a carrier; 232 (50%) of 466 of those with a
screen-negative result erroneously believed that the result meant that
they were definitely not carriers. There was no significant difference
between carriers and screen-negative individuals in degree of general
anxiety, although 16% of carriers reported feeling worried about their
test results. Carriers had a poorer perception of their current health
than did non-carriers, even though they had been told that carrier
status confers no disadvantages to their own health. There were no
differences between carriers and screen-negative individuals in
reproductive intentions or behaviour.
Cystic Fibrosis Screening
Cystic Fibrosis Screening
Cystic Fibrosis Screening
Cystic Fibrosis Screening
Cystic Fibrosis Screening
Cystic Fibrosis Screening
Cystic Fibrosis Screening
Cystic Fibrosis Screening
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